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dc.contributor.authorSarabia Cobo, Carmen María 
dc.contributor.authorTaltavull Aparicio, J.M.
dc.contributor.authorMiguélez Chamorro, A.
dc.contributor.authorFernández-Rodríguez, Alba
dc.contributor.authorOrtego Maté, María Carmen 
dc.contributor.authorFernández Peña, Rosario 
dc.contributor.otherUniversidad de Cantabriaes_ES
dc.date.accessioned2025-01-17T13:49:09Z
dc.date.available2025-01-17T13:49:09Z
dc.date.issued2020-12
dc.identifier.issn0897-1897
dc.identifier.issn1532-8201
dc.identifier.urihttps://hdl.handle.net/10902/35041
dc.description.abstractAim: To explore the perceptions of main caregivers regarding caring for chronic complex patients in two different regions of Spain. Background: Spain is a country with an ageing population and a high number of people with chronic diseases. It is well known that the role of the caregiver is important to ensure quality of life and appropriate care. Methods: Qualitative design using focus groups. Five focus groups, from two different regions, were conducted with 22 caregivers of people with chronic complex diseases to explore their personal experience, examine the quality of care received by the patient and their family and to develop strategies for the improvement of the quality of health care. The focus groups were audio and video recorded. The transcriptions of the focus group sessions were exported to qualitative software analysis MAXQDA 2018.2. The qualitative content analysis was based on different analytical cycles. Results:In general terms, caregivers would refer to accepting the care of their family members, but they highlight many negative aspects such as tiredness, lack of help and overload of care. They indicated general satisfaction with the health system but indicated that help was insufficient and that strategies to better address the situations of the complex chronic patient should be improved. The main categories observed were: Conclusions. Complex chronic illnesses are increasingly common at present, generating important consequences on the lives of patients and that of their caregivers. The design of any health strategy for facing the dilemma of chronic illnesses, must necessarily include the vision of the caregivers.es_ES
dc.format.extent28 p.es_ES
dc.language.isoenges_ES
dc.publisherElsevieres_ES
dc.rights© 2020. This manuscript version is made available under the CC-BY-NC-ND 4.0 licensees_ES
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/*
dc.sourceApplied Nursing Research, 2020, 56, 151344es_ES
dc.subject.otherChronic diseasees_ES
dc.subject.otherMultiple Chronic Conditionses_ES
dc.subject.otherNursinges_ES
dc.subject.otherCaregiverses_ES
dc.subject.otherMixed 26 methodses_ES
dc.titleExperiences of caregiving and quality of healthcare among caregivers of patients with complex chronic processes: a qualitative studyes_ES
dc.typeinfo:eu-repo/semantics/articlees_ES
dc.relation.publisherVersionhttps://doi.org/10.1016/j.apnr.2020.151344es_ES
dc.rights.accessRightsopenAccesses_ES
dc.identifier.DOI10.1016/j.apnr.2020.151344
dc.type.versionacceptedVersiones_ES


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